Jovie's Journey

Our charity provides emotional support for families given an ‘incompatible with life’ prognosis during pregnancy. We care, because we've been there...

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The Jovie store...

...Let's get social

Read more about Elijah at www.joviesjourney.org.uk

Read about Hannah at www.joviesjourney.org.uk

Read all about Raif's incredible and miraculous journey at www.joviesjourney.org.uk
#joviesjourneycharity #spotlightsaturday

"At our 36 week scan we were told something looked abnormal with our baby's brain but Consultant wasn’t sure what it was. He informed us our baby would need a brain scan when he was born and because of this it was decided that I should be induced at 38 weeks.

When Thomas was six days old, an MRI scan showed that Thomas had Lissencephaly - a rare life limiting brain condition. We were told it was unlikely that Thomas would live past his second birthday, yet here we are having already celebrated four incredible birthdays with Thomas.

Along with Lissencephaly Thomas has complex epilepsy, developmental delays and needs around the clock care. The hardest part of our journey is definitely managing Thomas' seizures, at times they can take over so much of his life but he is never short of a smile.

Thomas is our ray of sunshine and always comes back fighting. He is adored by his two big brothers who love to help take care of him. We appreciate every second with Thomas, and continue to make as many memories with him as possible."

- Jasmine (Thomas' Mum)

#lissencephaly #joviesjourneycharity #incompatiblewithlife #rayofsunshine

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@joviesjourneycharity

Our charity provides emotional support for families given an ‘incompatible with life’ prognosis during pregnancy. We care, because we've been there...

The Jovie store...

...Let's get social

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